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Subject: "Confused about whether I have HSV1 and HSV2 or just HSV2" Archived thread - Read only
 
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Sunshine18
Member since Feb-15-08
6 posts
Feb-15-08, 10:30 PM (CST)
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"Confused about whether I have HSV1 and HSV2 or just HSV2"
 
   I had a blood test for HSV1 AND HSV2. The test came back HSV1 - negative and HSV2 -positive. I swear I have had HSV2 symptoms for the past 2 months!!! Now I got a cold sore five days ago. The cold sore is gone, but my lips are tingling - what does this mean? Can I now have 1 & 2 or do I have HSV2 on my lips. I am so confused. It seems like these symptoms just won't go away!

I think it's crazy how all of a sudden this just pops up. I am very healthy so I am having a hard time dealing with this. I am starting to get so depressed that I do not want to exercise anymore. I keep hoping that if I maintain my healthy eating habits and exercise that these symptoms will all go away and never show up again, but that has not been the case.

If I understand correctly, primary breakouts are usually bad and last a long time?? I was told that this was not my first breakout, however, this is the first time I've ever noticed these symptoms and trust me, I would have notices this before!! These symptoms are lasting for such a long time. Sometimes I think the doctors just don't know what they are talking about. Does anyone else think that no one seems to have a handle on this??!! I can't even begin to try to figure out how to treat this because things keep changing!!! Some days are bad and some days are okay, but it doesn't ever seem to just go away!! I was diagnosed in early January and continue to have symptoms everyday!!!

Help, I really need answers on:

1) How I got a cold sore if I only have HSV2
2) Can I have HSV2 and get a blister on my lip
3) What does the tingling on my lips mean?

Another thing -
My boyfriend was tested and was told that he has neither, but I'm not putting much faith into that because he did not ask for the test specifically because he was embarrassed, he just asked to be checked for all STD's!! I can't help from thinking that I got all of this from him because he is the only one I've been with for the past 2 years and I had been with no one 4 years prior to that!!! He has said that he gets fever blisters. Does this mean conclusively that he has HSV1 and if I kiss him, what will happen?

Sorry for all for the questions - as you can see I'm a bit of a mess right now, but I find that you guys are truly the best source of information!

Thanks!!!!!!


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  Subject     Author     Message Date     ID  
  RE: Confused about whether I have HSV1 and HSV2 or just HSV2 C16679admin Feb-15-08 1
     RE: Confused about whether I have HSV1 and HSV2 or just HSV2 graceadmin Feb-16-08 2
         RE: Confused about whether I have HSV1 and HSV2 or just HSV2 Sunshine18 Feb-16-08 4
     RE: Confused about whether I have HSV1 and HSV2 or just HSV2 Sunshine18 Feb-16-08 3
         RE: Confused about whether I have HSV1 and HSV2 or just HSV2 C16679admin Feb-16-08 5
             RE: Confused about whether I have HSV1 and HSV2 or just HSV2 auntiejessiadmin Feb-16-08 6
                 RE: Confused about whether I have HSV1 and HSV2 or just HSV2 Sunshine18 Feb-16-08 8
                 RE: Confused about whether I have HSV1 and HSV2 or just HSV2 Sunshine18 Feb-17-08 9
                     RE: Confused about whether I have HSV1 and HSV2 or just HSV2 C16679admin Feb-17-08 10
             RE: Confused about whether I have HSV1 and HSV2 or just HSV2 Sunshine18 Feb-16-08 7
                 RE: Confused about whether I have HSV1 and HSV2 or just HSV2 auntiejessiadmin Feb-17-08 11

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C16679admin
Member since Aug-29-06
4890 posts
Feb-15-08, 10:47 PM (CST)
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1. "RE: Confused about whether I have HSV1 and HSV2 or just HSV2"
In response to message #0
 
   Oh, all of it can be terribly confusing, lol!

OK, I'll hit what I can here. Did you get a type-specific IgG blood test? Do you have a copy of your results and could you post your actual numeric results here?

Since your results said you are only positive for Type II, I can think of three scenarios.

1. Yes, maybe you acquired Type II genitally and orally. I think that would be fairly unlikely, but it's possible.

2. The IgG test misses 10% of Type I infections, so maybe you are positive for Type I orally and the test just didn't catch it.

3. If your b/f has a history of fever blisters aka cold sores, then it's possible you had a pre-existing HSV-II infection, but just acquired Type I from him and that's why it didn't show up on your test results. That would also be fairly unlikely b/c having Type II does offer some protection from subsequently acquiring Type I.

Here's what I think might be useful. Post your test results. If you get oral symptoms again, go to the doc within 24-48 hours to get a culture or PCR swab done and typed and then you'll know what it is. Try to get your b/f to get his results. Typically if you just ask to be tested for STDs they WILL NOT test you for Herpes. But if he specifically asks if he has Herpes, I sure as Hell hope they're not telling him he does not if they haven't even done a blood test. Besides, if they did the type-specific IgG blood test on him, at the least is should show positive b/c he knows he has had cold sores in the past.

A first outbreak can last several weeks. Did they give you antiviral meds to control your symptoms? I don't think they can really know if this is your "primary" outbreak or a subsequent outbreak. That stuff is a bit confusing. The classic presentation would be a fairly severe OB shortly after acquiring the virus b/c your body would have no antibody response. But we certainly know many people don't even know they have H b/c they don't notice symptoms. And while a first OB is usually the worst and longest, some people will occasionally have a doozy of an OB later on in the game.

Oh, and if you did have oral HSV-II, I think it could certainly appear as a blister.

I hope that helps a little bit.

C.


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graceadmin
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10265 posts
Feb-16-08, 06:07 AM (CST)
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2. "RE: Confused about whether I have HSV1 and HSV2 or just HSV2"
In response to message #1
 
Definitely we need to look at your blood test results for you. Too many providers aren't aware of the false positive issues so I recommend everyone gets a 2nd opinion on them here.

If your bf has a history of fever blisters than yes he too has oral herpes - most likely hsv1. If indeed he did get tested for herpes - even the best tests we have still miss 1 out of every 10 hsv1 infections.

So what sort of testing have you had done for your genital symptoms over these past 2 months? What sort of treatments have you had done?

grace

"The Constitution of America only guarantees the pursuit of happiness--- you have to catch up with it yourself. Fortunately, happiness is something that depends not on position but on disposition, and life is what you make it." - Gill Robb Wilson


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Sunshine18
Member since Feb-15-08
6 posts
Feb-16-08, 07:01 AM (CST)
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4. "RE: Confused about whether I have HSV1 and HSV2 or just HSV2"
In response to message #2
 
   Hi Grace,

Thank you for responding and please see my response to "C." So far I'm not interested in taking meds because I just don't believe in filling your body with drugs, but if this continues I may not have a choice. I'm just waiting it out and hoping the symptoms will go away soon.

Do you have any information about diet and health as it relates to herpes?

You guys are all so wonderful. Thanks for caring!!

Sunshine


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Sunshine18
Member since Feb-15-08
6 posts
Feb-16-08, 06:57 AM (CST)
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3. "RE: Confused about whether I have HSV1 and HSV2 or just HSV2"
In response to message #1
 
   Dear C,

Thank you so much for your quick response! It's so comforting to know that there are people out there who care.
I had the IgG test done and I have a copy of my results, but there are no numbers on it, it just states HSV2 - positive and HSV1 -negative. I will call the doctors office to ask for the numbers, Can you tell me specifically what I am to ask for? Thanks!

PS Do you have HVS1 by any chance and have you tried Abreva? I've been using that everyday for the past three days.

Thanks again!!!!!


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C16679admin
Member since Aug-29-06
4890 posts
Feb-16-08, 08:37 AM (CST)
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5. "RE: Confused about whether I have HSV1 and HSV2 or just HSV2"
In response to message #3
 
   I am positive by a blood test for HSV-II only. I'm asymptomatic, but presumably I have a genital infection.

I believe Grace has quoted a study that shows that Abreva is basically a waste of money. My understanding is maybe it shortens the duration of a cold sore by several hours (not even a whole day) and it's relatively expensive. And I believe she has said that the similar Aveeno product is actually more effective and less expensive. I may have the details on what's not so great about Abreva slightly wrong, but that's the gist of it.

Others here know a lot more about the test results and how the labs work. I do believe some tests just say positive and negative without the numbers. I don't know that your doc will know any more than what your paper says. Does your result say what lab or which tests (like Herpeselect is a brand name of a test)? Hopefully one of the techies can comment for you.

I hear what you're saying about the meds, and I'm not the kind of person who is really thrilled at the idea of taking meds all the time either. BUT, I think if symptoms are bothersome, it's worth trying them for some relief. And you don't have to take them forever. I guess you could consider a couple of things. If this is a new infection, even though you seem to have antibodies, it can take people's systems some time to get used to dealing with the virus. If the meds can help that, why not do it for a little while to feel better and let your body get a handle on things? Alternatively, if you are concerned about what you may have going on orally, if you stop topical meds and DON'T take oral meds, then maybe you'll get a good visible OB (lol, I'm sure that's just what you want! ) that you can get cultured or swabbed to answer your question.

And there's really no official diet or anything. You may see stuff about things that can act as triggers, but there are really no hard and fast rules. If you want, you can keep a food diary and note your symptoms and see if you can find any connection for yourself and test it out by limiting and reintroducing the food to see if it does have a predicted effect on your symptoms. Some people seem to have issues with peanuts or caffeine, but LOTS of people don't at all. Others believe that they see a connection between their seasonal allergies or hormones and their OBs, but I don't think there are any studies on that sort of thing.

C.


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auntiejessiadmin
Member since May-14-05
15174 posts
Feb-16-08, 10:23 AM (CST)
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6. "RE: Confused about whether I have HSV1 and HSV2 or just HSV2"
In response to message #5
 
I understand people not wanting to take a lot of meds, but the meds help from the inside, and the creams only help from the outside, and don't do as much, nearly as fast.

Abreeva has been proven to heal a cold sore about a half day sooner than without it. The best thing Abreeva can do is maybe stop a cold sore from coming if you start using it at the first sign of the cold sore - at the tingle phase. Other than that, it doesn't do much.

The best thing you can do for yourself is keep yourself as healthy as possible, over all. Eat right, get enough sleep, etc. There really isn't a specific herpes diet, and while there are lots of theories about different foods, etc., its all very individual. Most people have no dietary triggers at all.

Jess

"In those times you seem to forget, I don't mind reminding you that you are a beautiful soul." ~ Cindy Campo

User names are beautiful things.


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Sunshine18
Member since Feb-15-08
6 posts
Feb-16-08, 11:28 PM (CST)
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8. "RE: Confused about whether I have HSV1 and HSV2 or just HSV2"
In response to message #6
 
   Thanks Jess - great information!


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Sunshine18
Member since Feb-15-08
6 posts
Feb-17-08, 00:22 AM (CST)
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9. "RE: Confused about whether I have HSV1 and HSV2 or just HSV2"
In response to message #6
 
   Okay C, Jess and anyon else who cares to comment!

If you're not sick of me yet, I have one more question! Could you both give me your opinions on the following_

1) What's up with the Purell guy? Is this for real??

2) Taking Lysine

3) Good topicals for the HSV1 (lips)

4) Good topicals for HSV2

Also -

5) Valtrex suppression dosage

6) Valtrex breakout dosage

Sorry if these questions have been asked before, but there are so many post to read through.

You're both angels - thanks a lot!!!

Sunshine


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C16679admin
Member since Aug-29-06
4890 posts
Feb-17-08, 05:52 AM (CST)
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10. "RE: Confused about whether I have HSV1 and HSV2 or just HSV2"
In response to message #9
 
   Good morning!

I only have a minute, so I have to be quick.

Here is the link to the Herpes Handbook: http://www.westoverheights.com/genital_herpes/handbook.html

That will tell you the proper dosages for the Valtrex.

I have read lots of those posts about Purell. I've never tried it. Since it's mostly alcohol, it is very drying. I might be careful where I'm applying it, ya know? Otherwise, I don't think it would do much harm. There is certainly no study or anything proving it does any good. IMO, the most it could do is kill any virus on the surface of the skin, which would be sort of a temporary fix.

As far as I know, Lysine has never been proven to do anything outside a test tube. I don't know much about it.

And, sorry, but when you say topicals, what are you wanting them for? I mean, there are numbing agents, barrier creams, Tea Tree Oil...Domoboro's Solution... I'm not sure what you want the topical to achieve--those things solve slightly different problems.

C.


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Sunshine18
Member since Feb-15-08
6 posts
Feb-16-08, 11:27 PM (CST)
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7. "RE: Confused about whether I have HSV1 and HSV2 or just HSV2"
In response to message #5
 
   Thanks C, I think I'm going to give this a couple of more days then I'm going to take the Valtrex. My Doctor has prescribed a daily dose of 500 milligrams that I can get filled whenever I need them. The only thing I'm afraid of now is taking them, stopping and then it comes back full blast. You know, I would have an easier time with this virus if the answers were clear cut. I feel so helpless not being able to control this virus!

Thanks again C.


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auntiejessiadmin
Member since May-14-05
15174 posts
Feb-17-08, 09:54 AM (CST)
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11. "RE: Confused about whether I have HSV1 and HSV2 or just HSV2"
In response to message #7
 
There is a possibility that if you were to take valtrex suppressively, and then stop it, that you might have an ob. After that one ob, things calm down.

Of course, some people never take antivirals suppressively, or they decide to take them if they are in a relationship with someone who is negative.

Lysine hasn't been proven to do much outside of the lab, but some folks swear by it.

The purell thing - never tried it, probably never will. For me, its more about sensitive skin and many allergies, and I would be afraid I'd get some funky allergic thing going on, which in turn would probably trigger more obs.

500 mg of valtrex is the usual starting dose. If you decide to take it, and still get frequent obs, you can up that to 1000 mg, either once a day or even better, 500 mg 2x/day.

Jess

"In those times you seem to forget, I don't mind reminding you that you are a beautiful soul." ~ Cindy Campo

User names are beautiful things.


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